I was involved in a blind study in 1997 in Orlando and was lucky enough to get the actual drug - Pregablin. The anxiety I was going through prior to the study was out of control. I couldn't even drive myself to the clinic. Just getting out of bed was a major task. Within two days of ingesting Pregablin, I was able to get out of bed without the butterflies interferring. I actually wanted to cook. I started cleaning my house (even the refrigerater). I was able to get the courage up to put a resume together and get a job. The drug was pulled and I had no access. I became desperate and worked with the staff to come with something comprable to save me until Pregablin becomes available. If anyone knows anything about the release date, please share. The last I heard was that Europe was holding the patent. I would like to talk with someone that has had an experience with Pregablin or what you have found that works for you. Thank you for your time.
Posts: 3 | From: Georgia | Registered: Jul 2005
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I was in simular study in South Florida. My Fibromyalgia was terrible. I also received the real drug and was able to feel like a normal person without pain. Did you find out if we can get the drug?
-------------------- Meetinglady Posts: 1 | From: South Florida | Registered: Aug 2005
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I did some research about two years ago and found that Europe is holding the patent for some reason. Our FDA wouldn't release it because they said they found that it caused tumors in one specific type of mouse. I don't understand this. I did read that the patient could be release in two to four years for us. I'm just waiting and hoping that we will be able to recieve it soon. I am going to do more research and will let you know what I can find out. If you find anything out please let me know. The doctor that was conducting the experiment was interested in the effect the drug had on me and was affraid I would go back into my shell without it so we came up with a comprable combination of drugs that had a similar affect.Right now I am taking GABAPENTIN (neurontin) and CLONAZEPAM (klonopin). I don't know if you are aware of this but the main ingredient in PREGABLIN is GABAPENTIN. We wern't sure of the other ingredient because they weren't told . But we tried several combinations of things like neurontin with xanax,valium,and another one I don't remember. Those didn't work for me. The combination made me nervous. (That's a good thing because they are very addicting. We finely settled on the klonopin. This really works. I have been taking it for about seven years now and it works. I may have a panic attach on the average once a week. Before it was a daily thing. I couldn't leave the house. If I could find enough people to give a testimony maybe we could do something together as a group to get this great medication "pregablin" back. It would change so many people's lives. I live a normal life now and am working as a ward secretary in a hospital. But this combination is still not as good as the real thing. Thank you for writing and please keep me posted. Feel free to give my address to anyone that is familiar with this drug or wants to talk about their situation or getting it in the US.
Posts: 3 | From: Georgia | Registered: Jul 2005
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The drug IS available in pharmacies in the U.S. now. I am absolutely thrilled with it for my fibromyalgia. I am taking 450 mg a day, up from 300 to start. I started on 09/13/2005 and I can't believe the difference already. You can get it by asking your MD for a prescription. If he/she isn't familiar with the drug (mine was not), you can take in some literature off a reputable internet site and show it to the doctor. I had no idea it would work THIS well. I would be happy to talk with anyone privately about it. Greymom
Posts: 1 | Registered: Sep 2005
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I would like to talk with someone that has had an experience with Pregablin or what you have found that works for you. Thank you for your time.
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