I have been on indomethacin for about a yr for cough headaches Has anyone else found that your body gets used to this drug and ceases to work And does anyone else use it for headaches GoldenFrost
Posts: 1 | From: Port Franks, Ontario, Canada | Registered: Dec 2004
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posted
Hi, I've just joined this forum and seen your question.
I take Indo for Chronic Paroxsymal Hemiacrania - a type of cluster headache. It's known to be the only effective pain relief for CPH headaches.
I can't say for sure if my body's got used to it but I am suffering from more headaches than I used to when I first started taking it.
Posts: 4 | From: Netherlands | Registered: Apr 2005
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Not being a chronic user of indomethacin, I couldn't say whether the effect has lessened. I've been taking it as needed for gout and tendonitis for the last four years, and it's been a marvel every time. My gout and tendonitis attacks have increased in frequency this past year, but that's been due to job-related stress and not any change in the medication itself. I haven't even increased in dosage, except for one prescription last year, and I think it was a substitute doctor that time.
posted
Hi. My name is Tonya and I'm new to this board. I'm in the USA (Atlanta, GA). I take Indo for Chronic Paroxsymal Hemiacrania as well. I have been taking them for 7 days. This morning I woke up nauseated with a headache (a different kind of headache...almost like a stress or tension headache) and I felt like I had been hit by a truck. It almost felt like a really bad hangover (well, at least from what I can remember from my younger years!) Anyway, I wasn't sure if this may be a side effect of the drug, or I just ate something that didn't agree with me or maybe have a "bug".
Anyone with these headaches (Paroxsymal Hemiacrania) knows that we can have days/weeks with no pain at all. Well, I was on that pain-free period when I started the drug. So I'm still waiting to see if this drug will help with it. I'll know in a week or so when "the headache" is due back again.
I'll say this...I don't know what's worse...the bad headaches or a constant smaller headache with nausea and weakness! UGH!!
Posts: 1 | From: Atlanta, GA, USA | Registered: Aug 2005
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Since I last posted and said that my headaches were now worse on Indo, I have had a diagnosis for these other headaches and it's not down to the drug at all. In fact, from 20th August I cut out one tablet per day and am managing on a reduced dose. If all keeps going well I'll try and cut out another pill and a week or two.
I do hope the Indo is helping you.....it certainly helped me get my life back when I went on it.
Posts: 4 | From: Netherlands | Registered: Apr 2005
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Not sure if you guys come back and check this. I've had chronic paroxysmal hemicrania for 4 years. FINALLY about a year and half ago i was correctly diagnosed (after I had been to 8 different drs) and i was put on indocin. The first year I had to mess with my dosage A LOT. I started on 150mg a day. About 2 months after I started taking it I started having over dose symptoms. SO I was lowered to 100mg a day. About 3 months later I started having over dose side effects. Now I'm on 75 mg a day. A 25 mg in the morning and 50mg at night. This has worked out great. I haven't had a "flare up" in about 6 months =-) I also take prevacid or aciphex for my stomach to protect it from the indocin. The only issue I have is durning the summer when it's hot I NEED to carry around lots of water with me. I think indocin can make you dehydrate faster in hot weather. I feel like I have my life back though. Before I was diagnosed I seriously wanted to die from the pain. It's the worst pain I've ever experienced.
-------------------- Kimberly Posts: 1 | From: Simi Valley, CA | Registered: Nov 2005
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I have had CPH for most of my life having no idea what it was. I get the awful pain on my left side of my head, tearing eye, runny nose, swollen eye, dry mouth (all on same side of face). I take indocin three times a day (25mg per dose). I get no side effects other than being totally free of the headaches. I no longer wake up with thm in the middle of the night. I am happy with Indocin.
Posts: 1 | From: Worldwide | Registered: Nov 2005
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posted
I'm now off Indomethacin all together and find that instead of having an occasional day without a headache, I'm only having occasional days *with* a bad head. I don't know now if I was having side effects or if it was the Occipital Neuralgia that I also have. I was happy to stay on the pills indefinately if it meant no headaches but I had no check ups from any doctors and was just left to keep getting repeat prescriptions - and I was on a high dose, 50mg x 3 and 75mg slow release at night (225mgs daily). I'd read somewhere that it was recommended that a reduction in the dose is attempted every six months, and I'd been doing this with no success but this time I found the heads had virtually gone. I'll certainly go back on them if I need to but it's great to be drug-free for the first time in many years.
Posts: 4 | From: Netherlands | Registered: Apr 2005
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I just started this med today - the dr did tell me that it is used to treat headaches but for some people it makes their headaches worse - considering I have MIGRAINES I am skeptical about taking this med- however this is not the diagnosis I am being treated for with this med - it is for arthritis - GOD I hope this med doesnt mess me up.
I started using Indocin a few months back for my ice pick/ jolt headaches. when i first started it i was on a 25mg tab 3 times daily.
the result was severe migraines and dizziness like you've all mentioned and it hurts so bad. so much so that it was now the pain and not my jolt headaches.
i then was told to decrease my dosage to just two times a day. now i still get these migraines/dizziness but only on some days. (like today! ) but yeah. it seriously is the worst headaches ive ever felt.
what causes this sde effect? does anyone know? and is there ANY way to prevent it? thanks!!
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GoldenFrost
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) but yeah. it seriously is the worst headaches ive ever felt. ![[Smile]](smile.gif)
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